CODING (RENAL DISEASE INDEX)

The ERA-EDTA codes are used for registering patients on the Proton database. They have a number of shortcomings and anomalies but we are stuck with them. These are the 1995 version.

PRIMARY RENAL DISEASE CODES	CAUSE OF DEATH CODES
Primary glomerulonephritis
Pyelonephritis
Interstitial nephritis
Familial/hereditary	MALIGNANCY CODES
Congenital
Vascular
Secondary glomerular/ systemic

Disease codes

Primary renal disease			CODE
Primary glomerulonephritis
		Glomerulonephritis; histologically NOT examined	10
		FSGS with nephrotic syndrome in children	11
		FSGS with nephrotic syndrome in adults	17
		IgA nephropathy (proven by IF, not code 76 and not 85)	12
		Membrano-proliferative GN; type I (proven by IF and/or EM - not code 84 or 89)	15
		Dense deposit disease; MPGN type II (proven by IF and/or EM)	13
		Membranous nephropathy	14
		Crescentic (extracapillary) glomerulonephritis (type I, II, III)	16
		Glomerulonephritis; histologically examined, not given above	19
Pyelonephritis
	Pyelonephritis associated with neurogenic bladder		21
	Pyelonephritis due to congenital obstructive uropathy with/without vesico-ureteric reflux		22
	Pyelonephritis due to vesico-ureteric reflux without obstruction		24
	Pyelonephritis due to acquired obstructive uropathy		23
	Pyelonephritis due to urolithiasis		25
	Pyelonephritis due to other cause		29
	Pyelonephritis - cause not specified		20
Interstitial nephritis
	Nephropathy (interstitial) due to analgesic drugs		31
	Nephropathy (interstitial) due to cis-platinum		32
	Nephropathy (interstitial) due to cyclosporin A		33
	Drug induced nephropathy (interstitial) not mentioned above		39
	Lead induced nephropathy (interstitial)		34
	Gout nephropathy (urate)		92
	Nephrocalcinosis and hypercalcaemic nephropathy		93
	Interstitial nephritis (not pyelonephritis) due to other cause, or unspecified (not mentioned above)		30
Familial/hereditary renal diseases
	Polycystic kidneys; adult type (dominant)		41
	Polycystic kidneys; infantile (recessive)		42
	Medullary cystic disease; including nephronophtisis		43
	Cystic kidney disease - other specified type		49
	Cystic kidney disease - type unspecified		40
	Hereditary/Familial nephropathy - type unspecified		50
	Hereditary nephritis with nerve deafness (Alport's Syndrome)		51
	Cystinosis		52
	Primary oxalosis		53
	Fabry's disease		54
	Hereditary nephropathy - other specified type		59

Primary renal disease			Code
Congenital diseases
		Renal hypoplasia (congenital) - type unspecified	60
		Oligomeganephronic hypoplasia	61
		Congenital renal dysplasia with or without urinary tract malformation	63
		Syndrome of agenesis of abdominal muscles (Prune Belly)	66
Vascular diseases
		Renal vascular disease due to malignant hypertension	71
		Renal vascular disease due to hypertension	72
		Renal vascular disease due to polyarteritis (include MPA)	73
		Renal vascular disease - due to other cause (not given above and not code 84-88)	79
		Renal vascular disease - type unspecified	70
Secondary glomerular/systemic disease
		Cryoglobulinemic glomerulonephritis	78
		Diabetes glomerulosclerosis or diabetic nephropathy	80
		Myelomatosis/light chain deposit disease	82
		Amyloid	83
		Lupus erythematosus	84
		Henoch-Schoenlein purpura	85
		Glomerulonephritis related to liver cirrhosis	76
		Wegener's granulomatosis	74
		Goodpasture's Syndrome	86
		Systemic sclerosis (scleroderma)	87
		Haemolytic Uraemic Syndrome (including Moschcowitz Syndrome)	88
		Multi-system disease - other (not mentioned above)	89
Miscellaneous
	Tubular necrosis (irreversible) or cortical necrosis (not code 88)		90
	Tuberculosis		91
	Gout		92
	Nephrocalcinosis and hypercalcaemic nephropathy		93
	Balkan nephropathy		94
	Kidney tumour		95
	Traumatic or surgical loss of kidney		96
	Other identified renal disorders		99
	Chronic renal failure; aetiology uncertain		00

Cause of Death codes

Cause of death		CODE
	Cause of death uncertain/not determined	0
	Myocardial ischaemia and infarction	11
	Hyperkalaemia	12
	Haemorrhagic pericarditis	13
	Other causes of cardiac failure	14
	Cardiac arrest/sudden death; other cause or unknown	15
	Hypertensive cardiac failure	16
	Hypokalaemia	17
	Fluid overload/pulmonary oedema	18
	Pulmonary embolus	21
	Cerebro-vascular accident, other cause or unspecified	22
	Gastro-intestinal haemorrhage	23
	Haemorrhage from graft site	24
	Haemorrhage from vascular access or dialysis circuit	25
	Haemorrhage from ruptured vascular aneurysm (not code 22 or 23)	26
	Haemorrhage from surgery (not code 23, 24 or 26)	27
	Other haemorrhage (not codes 23-27)	28
	Mesenteric infarction	29
	Pulmonary infection (bacterial - not code 73)	31
	Pulmonary infection (viral)	32
	Pulmonary infection (fungal or protozoal; parasitic)	33
	Infections elsewhere except virus hepatitis
	Septicaemia	35
	Tuberculosis (lung)	36
	Tuberculosis (elsewhere)	37
	Generalized viral infection	38
	Peritonitis (all causes except for Peritoneal Dialysis)	39
	Liver disease due to hepatitis B virus	41
	Liver disease due to other viral hepatitis	42
	Liver disease due to drug toxicity	43
	Cirrhosis - not viral	44
	Cystic liver disease	45
	Liver failure - cause unknown	46
	Patient refused further treatment for ESRF	51
	Suicide	52
	ESRF treatment ceased for any other reason	53
	ESRF treatment withdrawn for medical reasons	54
	Uremia caused by graft failure
	Pancreatitis	62
	Bone marrow depression	63
	Cachexia	64
	Malignant disease, possibly induced by immunosuppressive therapy	66
	Malignant disease: solid tumors except those of 66	67
	Malignant disease: lymphoproliferative disorders except those of 66	68
	Dementia	69
	Peritonitis (sclerosing, with peritoneal dialysis)	70
	Perforation of peptic ulcer	71
	Perforation of colon	72
	Chronic obstructive airways disease	73
	Accident related to ESRF treatment (not 25)	81
	Accident unrelated to ESRF treatment	82
	Peritonitis (bacterial, with peritoneal dialysis)	100
	Peritonitis (fungal, with peritoneal dialysis)	101
	Peritonitis (due to other cause, with peritoneal dialysis)	102
	Other identified cause of death	99

Malignancy codes

Malignancy		CODE
	Previously reported multiple primary malignancies	11
Skin (excluding lip and genital)
	Squamous carcinoma	20
	Basal cell carcinoma	21
	Squamous and basal cell carcinoma	22
Leukaemia and reticuloses
	Myeloma	25
	Acute leukaemia	26
	Chronic leukaemia	27
	Reticulum cell sarcoma	29
	Kaposi's sarcoma	30
	Lymphosarcoma	31
	Plasma cell lymphoma	33
	Hodgkin's disease	34
	Lymphoreticular tumour	35
	Histiocytic reticulosis	36
Gastro-intestinal tract
	Lip	40
	Tongue	41
	Parotid	42
	Oesophagus	43
	Stomach	44
	Colon	45
	Rectum	46
	Anus	47
	Liver-primary hepatoma	48
	Liver-primary lymphoma	49
	Gall bladder and bile duct	50
	Pancreas	51
Neck and Thorax
	Larynx	53
	Thyroid	54
	Bronchus	55
	Lung, primary tumour	56
Urogenital tract
	Kidney - Wilm's tumour	60
	Kidney - renal cell carcinoma of host kidney	61
	Kidney - renal cell carcinoma of graft kidney	62
	Renal pelvis	63
	Ureter	64
	Urinary bladder	65
	Urethra	66
	Prostate	67
	Testis	68
	Penis	69
	Scrotum	70
	Perineum	71
	Vulva	72
	Vagina	73
	Uterus - cervix	74
	Uterus - body	75
	Ovary	76
Miscellaneous
	Breast	80
	Muscle	81
	Bone	82
	Brain - primary lymphoma	83
	Brain - other primary tumour	84
	Other tumour of the central nervous system	85
	Metastatic carcinoma, primary site unknown	90
	Other primary tumour	99

This page was updated in June 2001 and July 2002, last amended Thursday, November 30, 2006.

NOTE that the accuracy of any statements in this information CANNOT be guaranteed. It is published in the belief that it is correct, and we endeavour to keep it so - but we do make mistakes. Furthermore, over some subjects there are differing opinions, or differing degrees of certainty. We have usually not attempted to discuss these here because the aim has been to provide an immediate and brief guide. In all areas, prior medical knowledge is assumed. The EdRenHANDBOOK is not suitable for use by those without such a background. Contact us by email or at the address given at the foot of the contents page with any comments or corrections.